It is that time of the year again where it seems like all I am doing with my free time is setting up training rides, recruiting new riders, motiving teammates, spending hours in the saddle training every weekend, organizing fundraisers, and pestering family and friends for donations. Sure, I may have MS, but why all the intensity? (What is MS you may ask? Check out this primer)
The biggest reason is I want to have as many healthy, active years with my family as I can beg, borrow, and steal. There is ample evidence that exercise helps with MS by improving mood and cognition, reducing fatigue, and improving fitness. While there is no proven genetic component to MS, I would love it if my kiddos only encounter with MS in their lifetime is through me. Keeping an active and healthy lifestyle is one of the only tools I have to try to control my disease.
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| I ride for these two bozos. |
It has been just shy of 6 years since I was officially diagnosed with MS. My first encounter with the disease put me in the hospital for a week. I slowly lost feeling and strength on the right side of my body to the point where even walking was a challenge. A round of steroids, a month off work, another three months of recovery put me back in the healthy column. Unfortunately, my next relapse was less than a year later. On the one hand a blessing - there was an official diagnosis with accepted, effective treatment. On the other hand, as my extremely practical neurologist put it - that with the severity of my first two relapses, gender, and age, I most likely had primary progressive MS, but that only time would tell.
To say this was a wakeup call would be an understatement. The cliche is you always take your health for granted until you don't have it, which was as true for me as anyone. The next two years were very difficult as I finished up my postdoc all while wondering if the other shoe would drop. I was lucky to enroll in a drug study, so I did not need to disclose my condition to my insurance company. But what would happen if I got too sick to work? Luckily, I have a tremendously supportive partner in Ali. Together we've been able to rearrange and plan our lives to the point where the future is not so terrifying.
So far I have been very fortunate. The drug treatment I have been on for the past 6 years (and the foreseeable future, as MS has no cure) has been very effective, with no relapses since my initial diagnosis. I have been healthy and active, but I know that this won't always be the case.
So this is why I throw myself into Bike MS every year. I ride because, for right now, I can. I will never be a great or even a good cyclists, but I truly enjoy the ability to do it right now.
To say this was a wakeup call would be an understatement. The cliche is you always take your health for granted until you don't have it, which was as true for me as anyone. The next two years were very difficult as I finished up my postdoc all while wondering if the other shoe would drop. I was lucky to enroll in a drug study, so I did not need to disclose my condition to my insurance company. But what would happen if I got too sick to work? Luckily, I have a tremendously supportive partner in Ali. Together we've been able to rearrange and plan our lives to the point where the future is not so terrifying.
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| At the 2013 Bike MS150. |
Through my team the Penultimates, we mobilize riders and provide a platform for everyone, regardless of ability and skill, to learn how to do long distance riding. Over the last 3 years our team, composed of over 50 different individuals, has raised over $70,000 for the MS Society - a feat that I could not have done alone. Through the efforts of many friends, family, and fellow teammates we can accomplish a feat greater than the sum of its parts.
So if you have the desire and means, please help me in my fight against this disease - any amount will help. You can donate right here at my rider page. It is hard to sustain the generous giving from so many for so many years in a row. I am so appreciate of all that have donated to me the last few years and I appreciate all the support you have given me. I look forward to many more years of health, but I want to know that I did all I could while I could. Cheers!







